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Quality of life/care and long term effects

Here you will find short summaries of selected publications regarding quality of life, quality of care, and long term effects.

Less obesity after craniopharyngioma treatment thanks to centralization (Van Schaik et al., 2023)  The number of children facing obesity after craniopharyngioma treatment has decreased since the Princess Máxima Center opened in 2018.

Method of administration affects drug side effects in certain group of children with cancer (Uittenboogaard et al., 2023)  A certain group of children benefits from an infusion instead of an injection with the drug vincristine.

Higher breast cancer risk after certain forms of childhood cancer treatment (Wang et al., 2023)  Women who have been treated for cancer as a child with a certain type of chemotherapy have an increased risk of breast cancer. 

Oral complications in long-term survivors of childhood cancer (Stolze et al., 2023)  More attention needs to be paid to oral health during and after childhood cancer treatment.

Outcome indicators make quality of life after childhood cancer measurable (Van Kalsbeek et al., 2023)  A new measurement tool helps analyzing the survival rate of children with cancer, but also the quality of survival.

Fewer side effects of dexamethasone in children with leukemia (van Hulst et al., 2023)  Physician-researcher Annelienke van Hulst investigated how behavioral changes caused by dexamethasone can be reduced.

App ensures less pain at home (Simon et al., 2022)  The KLIK Pain Monitor app is highly appreciated by children with cancer and their parents, and its use results in less pain at home.

More overweight seven years after pediatric cancer diagnosis (Brinksma et al., 2022)  Research shows that survivors after a brain tumor or leukemia are more often overweight.

iTHER-study: in search of new treatment options (Langenberg et al., 2022)  Based on a European clinical study, all children with cancer at the Princess Máxima Center now receive DNA and RNA analysis of the tumor. 

Profound impact of COVID-19 pandemic on pediatric cancer clinical research (Rubio-San-Simón et al, 2020) Information on the disruption of clinical drug research in children with cancer helps to make adjustments in order to be better prepared for future crises.

Pain management in the domestic situation not always optimal (Simon et al., 2020) Most children with cancer experience significant pain at some point when at home, but in approximately one third of cases no medication is given for pain relief.