Who can enter
- Children and adults who completed therapy for a pediatric osteosarcoma or Ewing sarcoma
- All ages
Goal
The goal of this study is to examen the long term problems that occur after surgery or radiation therapy in children and adults that were treated for a pediatric bone sarcoma. Consequently, we want to determine how we can best tackle and follow up these problems.
Background
Even after completion of treatment for a bone sarcoma, you still go to the hospital for regular follow up. Besides checks at the pediatric oncologist’s, follow up by other care professionals (like the orthopaedic surgeon or physical therapist) is also often required. Therefore a joint (‘multidisciplinary’) clinic was constructed including a pediatric oncologist, orthopaedic surgeon, rehabilitation specialist, physical therapist and psychologist.
When you come to this clinic, you can choose to participate in research. In this study, we evaluate the problems that occur after surgery or radiation therapy. Surgery or radiation therapy for a bone sarcoma can have impact on many aspects in your life. Even after you have finished therapy. For example in exercising, sports, school, hanging out with friends, and how comfortable you feel in your own skin. However, we do not know very well which problems exactly occur and how often. That is why we do this study.