Who can enter
- Children and young adults with a newly diagnosed rare soft tissue sarcoma
- Age: below 25 years old
Goal
The aim of this study is to learn more about the origin and behavior of rare soft tissue tumors in children and young adults. We want to do this by collecting data and doing research with a tumor tissue and blood. With this, we aim to improve the treatment of patients with soft tissue tumors in the future.
Background
'Non-rhabdomyosarcoma soft tissue tumors’ is a collection of different types of rare tumors. Soft tissue tumors occur all over the body and arise in the soft tissues. The soft tissues are, for example, muscles, connective tissue, fatty tissue, or the wall of a blood vessel.
Very little is known about the origin of soft tissue tumors, especially this group with different types of rare soft tissue tumors. Within this study, we want to further investigate tumor tissue from children with these rare soft tissue tumors in the laboratory to learn more about their origin and behavior. By doing so, we hope to be able to diagnose patients better in the future and possibly develop better treatments.
Among other things, we investigate the tumors’ genetic material (DNA) and look for characteristics that predict how fast the tumor will grow. We also try to grow tumor cells outside the body in the laboratory so that we can use them for further research in the laboratory. We also collect data on the disease, treatment and treatment outcome of children from different hospitals in Europe.