Who can enter
- Parents of children with cancer of all ages.
- Children (aged 8 years and older) and adults with cancer.
- Healthcare professionals (such as oncologists, nurse specialists, psychologists, and social workers) involved in care at the Princess Máxima Center.
- Organizational representatives (such as members of the client council, the Dutch Childhood Cancer Association (Vereniging KinderKanker Nederland), the KLIK Team, and management.
Goal
The aim of this study is to explore how the use of questionnaires in care can be improved. We focus on two types of questionnaires:
- The PROMIS questionnaires, a new type of questionnaire used to assess quality of life.
- The Psychosocial Assessment Tool (PAT), a questionnaire that helps identify possible concerns or challenges within the family.
We want to know what users think about these questionnaires: What works well? What could be improved? And how can their use in daily care be optimized?
Background
Questionnaires have been used for many years at the Princess Máxima Center to assess children's quality of life and to identify any psychosocial concerns within the family at an early stage. These questionnaires are completed via the KLIK portal and are discussed with a healthcare professional.
To further improve the use of these questionnaires, we will conduct interviews with parents, children, healthcare professionals, and organizational representatives. In addition, the questionnaires will be tested in daily practice. The insights gained from this study will be used to improve the implementation of the PROMIS questionnaires and the PAT in clinical care.