Aims of the study
- To gain insight in psychosocial functioning of adult CCS, in particular survivor-specific psychosocial outcomes;
- To gain insight in the association of physical health problems (burden of disease), cancer treatment and diagnosis with psychosocial functioning;
- To gain insight in the psychosocial risk and protective factors of psychosocial functioning of adult CCS.
How is the study executed?
Data on psychosocial outcomes were collected as part of the Dutch Childhood Cancer Survivor Study (DCCSS)-LATER Cohort Part 2; clinical visit and questionnaire study (DCCSS-LATER 2 study). CCS completed questionnaires on psychosocial functioning, among which mental health outcomes and health related quality of life.
Consequences for care
With the knowledge of this research, the psychosocial care for children and young people growing up with childhood cancer and of adults with a history of childhood cancer can be improved. The results will contribute to the SKION LATER guidelines and the content of developmental care and aftercare in the Princess Máxima Center for Pediatric Oncology. In addition, the acquired knowledge can be used for the development of psychosocial group interventions aimed at psychosocial problems after treatment for childhood cancer.
Research team
Anne Maas, Heleen Maurice-Stam, Martha Grootenhuis, Leontien Kremer
Publications
Maas, A; Maurice-Stam, H; Kremer, LCM; van Dulmen-den Broeder, E; Tissing, WJE; Loonen, JJ; van der Pal, HJH; de Vries, ACH; van den Heuvel-Eibrink, MM; Ronckers, C; Neggers, S; Bresters, D; Louwerens, M; van der Heiden-van der Loo, M; van Gorp, M; Grootenhuis; Dutch LATER study group. Psychosocial Outcomes in Long-Term Dutch Adult Survivors of Childhood Cancer: the DCCSS LATER 2 psycho-oncology study [Manuscript submitted for publication]. Psycho-oncology, Princéss Máxima Center for Pediatric Oncology.
Maurice-Stam H, van Erp LME, Maas A, van Oers HA, Kremer LCM, van Dulmen-den Broeder E, Tissing WJE, Loonen JJ, van der Pal HJH, Beek LR, de Vries ACH, van den Heuvel-Eibrink MM, Ronckers CM, Bresters D, Louwerens M, van der Heiden-van der Loo M, Huizinga GA, Grootenhuis MA; Dutch LATER study group. Psychosocial developmental milestones of young adult survivors of childhood cancer. Support Care Cancer. 2022 Aug;30(8):6839-6849. doi: 10.1007/s00520-022-07113-3.
van Gorp M, van Erp LME, Maas A, Kremer LCM, van Dulmen-den Broeder E, Tissing WJE, Loonen JJ, van der Pal HJH, de Vries ACH, van den Heuvel-Eibrink MM, Ronckers CM, Bresters D, Louwerens M, van der Heiden-van der Loo M, Huizinga GA, Maurice-Stam H, Grootenhuis MA; Dutch LATER Study Group. Increased health-related quality of life impairments of male and female survivors of childhood cancer: DCCSS LATER 2 psycho-oncology study. Cancer. 2022 Mar 1;128(5):1074-1084. doi: 10.1002/cncr.34003.