Who can enter
Children/ adolescents/ adults with a tumor in or around the brainstem (DIPG/DMG).
Goal
The goal of this study is to collect data about the disease and treatment of all patients with DIPG/DMG in Europe.
Background
Brainstem tumors are malignant. When the tumor is located in the brainstem, we call the tumor a DIPG. And when the tumor is located on the midline of the brain or in the spinal cord, we call the tumor a DMG. Treatment options for patients with DIPG/DMG are limited. Therefore, a group of pediatric oncologists wants to learn more about these diseases.
They have developed the DIPG/DMG Registry. In a registry, data of patients with DIPG/DMG are collected in a structured way in one file. With this registry, we hope to be able to answer questions like:
- How often does DIPG/DMG occur in Europe?
- What are the effects of different treatments?
Comprehensive data will be collected. For example:
- Medical data: age, symptoms, other diseases
- Characteristics of the tumor
- Data regarding the treatments
- MRI images
With data from the DIPG/DMG Registry we hope to get more insight into the disease.
This study only collects data. The study does not effect the treatment of patients with DIPG/DMG.