The aim of the SILENCE-study is to investigate the validity of a wearable device to non-invasively measure sleep disruptions and stress due to infusion pump alarms. In this pilot study, 20 children admitted for anti-cancer treatment and their inrooming parents will be included. The results of the SILENCE study will help to set up a follow-up study to evaluate whether a more silent hospital environment improves sleep and diminishes stress.
To optimally measure sleep, it is important to have valid questionnaires with a low (time)burden. Currently few properly validated questionnaires on sleep exist for the pediatric population. PROMIS (Patient-Reported Outcomes Measurement Information System) item banks are promising, and can be used across countries and different populations. By making outcomes more comparable and using validated outcome measurements, we can improve research and patient care. Importantly, PROMIS item banks are developed to be used as computer adaptive tests (CAT). CAT has the ability to generate an outcome with a small amount of questions, thus saving time and patient effort: questions are selected for the individual, based on his or her previous answers.
We are now validating both PROMIS sleep item banks developed for adults, and the item banks developed for 8-18 year olds, in healthy adolescents: to produce Dutch norm values and determine which item banks suit this population best.
Jojanneke is supervised by Dr RRL van Litsenburg, Prof Dr GJ Kaspers (Máxima and VUmc) and Prof. Dr M.A. Grootenhuis
Publications
- van Kooten JAMC, Maurice-Stam H, Schouten AYN, van Vuurden DG, Granzen B, Gidding C, de Ruiter MA, van Litsenburg RRL, Grootenhuis MA. High occurence of sleep problems in survivors of a childhood brain tumor with neurocognitive complaints: the association with psychosocial and behavioral executive functioning. Pediatric Blood and Cancer. 2019 Nov 66(11):e27947 https://www.ncbi.nlm.nih.gov/pubmed/31418996
- van Kooten JAMC, van Litsenburg RRL, Yoder WR, Kaspers GJL, Terwee CB. Validation of the PROMIS Sleep Disturbance and Sleep-Related Impairment item banks in Dutch adolescents. Quality of Life Research. 2018 Jul 27(7):1911-1920. https://www.ncbi.nlm.nih.gov/pubmed/29663257
- van Kooten JAMC, Terwee CB, Kaspers GJL, van Litsenburg RRL. Content validity of the Patient-Reported Outcomes Measurement Information System Sleep Disturbance and Sleep Related Impairment item banks in adolescents. Health and Quality of Life Outcomes. 2016 Jun 18;14:92. https://www.ncbi.nlm.nih.gov/pubmed/27315795
Thesis
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