Project description:
I am involved in a European project developing a Union-wide platform to support social networking and to improve the links amongst patients, cancer survivors and social and health professionals active in cancer prevention and care. This network is called: The European Network of Youth Cancer Survivors. Existing organizations including e.g. Childhood Cancer International Europe, Youth Cancer Europe, PanCare and the Princess Máxima Center collaborate in this European consortium. The platform focuses on themes identified by young survivors throughout Europe to further improve equitable, lifelong care and will be available in many languages.
Within this project I coordinate the development of an international clinical practice guideline for the transition of child-centered to adult-oriented care for childhood and adolescent cancer survivors. This guideline will help healthcare organizations initiate transition programs or improve existing transition programs so that a gradual transition from pediatric to adult care services can be facilitated. This will improve the quality of care and quality of life for survivors of (childhood) cancer.
Daily supervisor: Renée Mulder
Promotor: Leontien Kremer