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Aim of the study
- To describe patient-centered communication during the diagnosis trajectory.
- To examine the experiences of the patient, parent and healthcare provider with communication during the diagnosis trajectory.
- To explore associations between patient-centered communication during the diagnosis trajectory and long-term outcomes, such as patient/parent experienced quality of care and mental health outcomes.
How is the study executed?
- Analysis of audio recordings of diagnosis and treatment conversations between a healthcare provider and the family.
- Assessment and analysis of interviews with parents, children and healthcare providers.
- Questionnaires about experienced quality of care, mental health outcomes of parents and children and patient-centered communication.
Consequences for care
By gaining insight into the communication during the diagnosis trajectory, we gain a better insight into what is or is not a pleasant experience in this phase and we can optimize these conversations such that it will closely fit with the individual needs of families in the future.
Research team
Petra Buursma (PhD student), Prof. Dr. Martha Grootenhuis (Promotor), Prof. Dr. Peter Hoogerbrugge (Promotor), Dr. Sasja Schepers (Lead Investigator/co-promotor), Dr. Marijke Kars (co-promotor), Drs. Esther van den Bergh, Drs. Natasja Dors.