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Ismay de Beijer

PhD student
Ismay de Beijer

Implementation of the digital European PanCare SurvivorShip Passport to improve long-term care for survivors of childhood and adolescent cancer

During my studies in Pedagogical- and Behavioral Sciences and my part-time job in the hospital, I built up the ambition to contribute to the optimalization of healthcare. I've seen how unfair life can be at times and I want to help to give everyone a chance at a healthy life. That is why I am very happy that I can participate as a PhD student in the realization of the digital European Pancare SurvivorShip Passport (PanCareSurPass). This passport aims to optimize long-term follow-up care and thereby improve or maintain the quality of life of childhood cancer survivors.

My PhD project focuses specifically on uncovering barriers and facilitators related to the implementation of the PanCareSurPass. These factors are not only related to care, but also to economic, ethical, legal, social and technological aspects. To ensure that all stakeholders are heard and to further explore the contextual factors, we will organize Open Space meetings in several European countries. In these meetings, the participants (e.g. survivors and healthcare professionals) are encouraged to determine for themselves what the discussion will be about and to take responsibility for guiding the sessions. Furthermore, we will focus on developing guidelines for the delivery of survivorship care for childhood cancer survivors less than five years from the end of treatment

In my spare time, I enjoy exploring undiscovered paths in the forest, searching for the best places for a cappuccino, trying out new food with friends and reading books about Buddhism and astronomy. One day I hope to walk the Pacific Crest Trail and be able to admire the Milky Way!