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Sebastian Bon

MD/PhD student
Sebastian Bon
Parents’ understanding, views and experiences concerning exome sequencing in a pediatric renal cancer research setting
Phone 06 50006690

Genetic research plays an increasingly important role in childhood cancer care and research. This means that more parents and children are approached for genetic testing and that more families receive genetic results. From previous research we know that it can be difficult to reach a decision and that results can be difficult to understand and cope with. By interviewing parents we hope to learn more about what is important for them so we can adopt to their needs during counseling. We want to help families to make the choices that suit them best.