Open for inclusion:
APPROACH Study on the experiences of children with cancer (or their parents) with symptoms and the development of a symptom app - open for inclusion
Cancer in Pregnancy (CIP): long term follow-up of the children Clinical study into the short and long-term development of children who were prenatally exposed to any type of maternal cancer and/or treatment - open for inclusion
Educational priorities (pediatric cancer) What is important for a pediatrician to know and do when a child has suspected pediatric cancer? Educational priorities in a new pediatric oncology curriculum for general practice pediatricians - open for inclusion
ERNIE study (brain tumors) Clinical study into an individualized neuropsychological intervention for children with a brain tumor - open for inclusion (Dutch speaking only)
FOLLOW-ON study (ALL) Clinical study investigating the long-term outcome of childhood acute lymphoblastic leukemia (ALL) survivors who have experienced symptomatic osteonecrosis during or shortly after discontinuation of treatment - open for inclusion
Follow-up clinic bone sarcomas (Osteosarcoma & Ewing sarcoma) Clinical study of long term functioning after surgery or radiation therapy for a pediatric bone sarcoma - open for inclusion
KinderOncoNet Determine the needs of children with cancer, their parents, survivors and healthcare professionals for care close to home and developing a multidisciplinary care network called KinderOncoNet - open for inclusion (Dutch-speaking only)
KLIK-PROM portal Study into the improvement of the KLIK-PROM portal - open for inclusion
Long-term HIT (Stem cell transplantation) Clinical study investigating blood production in stem cell transplantation survivors - open for inclusion
MetVasA (SCT survivors) Clinical study of specific late effects of hematopoietic stem cell transplantation in childhood -open for inclusion
PROMIS-2 (Measuring quality of life) In this medical research study, we aim to assess whether the quality of life in children with cancer can be effectively measured using PROMIS-questionnaires - open for inclusion (Dutch speaking only)
SENSORY-2: a follow up Clinical study of smell and taste changes in childhood cancer survivors - open for inclusion
TRINGQS study (Tinnitus) Clinical study of tinnitus and its relation with hearing loss, biomarkers, genetics and quality of life in childhood cancer survivors - open for inclusion
Closed for inclusion:
ChIMES feasibility study Clinical study to find out whether it is practically feasible in daily care to use an oral score list that is completed by a child or parent when there is a risk of a sore mouth (oral mucositis) as a result of chemo- and/or radiotherapy -closed for inclusion
NEMO Project Clinical study of predicting daily functioning of children with cancer based on changes in their cognition/behavior - closed for inclusion
No place like home…. Focus group study to explore the wishes and needs of parents and children >12 years to receive part of their oncological treatment at home - closed for inclusion
RM-493-040 setmelanotide (Acquired Hypothalamic Obesity) Clinical study of treatment with setmelanotide in patients with Acquired Hypothalamic Obesity - closed for inclusion